Lectures and seminars Faculty event: Jonas Wastesson
Speaker: Jonas Wastesson
Title: Federated data analysis of routinely collected health data: some experiences of mapping Swedish register data and future perspectives
International collaboration based on routinely collected health data from different countries is often complicated by legal and data protection issues. Mapping administrative data to a common data model permits federated network analysis. This represents a powerful framework to conduct important research. In this presentation I will describe the challenges and possibilities of mapping administrative data to a common data model based on our experience as the first Swedish data partner in EHDEN. EHDEN is a large-scale federated network across Europe. Currently, EHDEN includes 166 data partners from 27 countries and ≈630 million patient records. Each data partner is responsible for harmonizing their data to the Observational Medical Outcomes Partnership (OMOP) common data model (CDM). The CDM uses standardized vocabulary that transforms data from disparate observational health databases into a common model. This federated network architecture ensures privacy by design as the data is hosted on mainframe servers run by data partners. To date, there are ≈80 peer-reviewed publications based on federated analysis part of the EHDEN project. We are currently mapping Swedish register data to the CDM using our data material including routinely collected administrative and healthcare data with national coverage on all individuals aged 65 or older from 2004 to 2020 living in Sweden. The data harmonization is conducted in collaboration with a certified partner company. Manual mapping of vocabularies, such the medical procedures registered in the Patient Register (in Swedish KVÅ) represent one of the major challenges. Mapping Swedish Register data to a CDM is challenging, but represents a promising approach to conduct high quality register research in a collaborative way.
About the speaker: Jonas Wastesson is senior research specialist in the geriatric pharmacoepidemiology group.
Join the faculty event in Wargentin! After the seminar, the faculty lunch will be served in Ljusgården.