Lectures and seminars Co-care in Chronic Disease - Inspiration day on how to care, research and develop together

12-11-2020 10:00 am - 3:00 pm Add to iCal
Online Digital event via Zoom, all registered participants will receive login details one week prior to the event

Welcome to an inspirational day which is part of the research programme Co-care in chronic disease at MMC, LIME, on 12 November 2020. This is an online event via Zoom.

Partnerships between patients and their families, clinicians and researchers are increasingly becoming the standard in development of good care and health services, especially when it comes to people living with chronic conditions. Co-care describes a novel way of thinking and working on how patients and healthcare professionals combine their resources and knowledge to achieve the best possible health.

This digital inspirational day is part of the research program Co-care in chronic disease at the Medical Management Centre (MMC), Department of Learning, Informatics, Management and Ethics (LIME) at Karolinska Institutet.

The event is open to all engaged patients, informal caregivers, researchers, health care professionals and others that actively collaborate to achieve better health. 

Welcome to a day full of inspirational conversations! 

Programme

Please note that most of the presentations will be held in Swedish, with a few exceptions which will be marked in the programme.

Moderator for the day is Cristin Lind, open, experienced informal cargiver and facilitator.

10:00-10:15
Welcome and introduction - What is co-care and why is it needed?

Professor Mats Brommels, PI for the Co-care in chronic disease research programme.

Professor Carl Johan Sundberg, Head of the Department of Learning, Informatics, Management and Ethics (LIME)

10:15-11:00
Reflections from the Co-care programme - what have we studied and what have we learned?

Co-Care Companion: co-designing a digital health service for Parkinson's disease.
Carolina Wannheden, PhD, MMC, LIME
Åsa Revenäs, MedDr, physical therapist and research manager at the Orthopedic Clinic, Västmanland Region.

Event-driven health care encounters for better cancer care - a co-care initiative
Professor Mats Brommels, MMC, KI

Eskil Degsell, open and experienced patient and family member, member of the Swedish Brain Tumor Association, Patients and relatives' representative at the Brain Tumor Flow at Karolinska University Hospital, Process leader for caregiver issues and PROMs at the Stockholm-Gotland Regional Cancer Center.

Who cares? Uncovering social relations and resources of persons living with brain tumor and their caregivers.
Marie Dahlberg, PhD candidate at MMC, KI 

How to achieve person-centred chronic care and what is the role of digital health services? Patients and health care professionals’ experiences from a specialist rheumatology clinic.
Emma Granström, public health scientist, PhD candidate at MMC, KI 

Lead patients and co-care 
Sara Riggare, founder of the lead patient movement in Sweden, PhD candidate in digital self-care, Uppsala University 

Research on co-care
Professor John Ovretveit, MMC, LIME

11:00-11:30
Other Swedish initiatives with partnership and collaboration in centre

Moving from participation towards partnership in nursing care
[in English]
Janet Mattsson, RN, MME, PhD. Senior lecturer. Associate Professor, Director of nursing care development Childrens Perioperative and Intensive Care Department, KS.

Business development in collaboration with patients - Susanne Karlfeldt from The Academic Specialist Center for Rheumatology, SLSO.

Patients in the driver's seat! Implementing patient-driven co-care innovations a research programme studying how co-care models can best be implemented to everyday health services and the daily life of patients.
Maria Lindberg Reinius, PhD, Postdoctor at MMC, KI.

Samskapa: a research programme for exploring, measuring and enhancing the coproduction of health and well-being
Professor Sofia Kjellström, The Jönköping Academy for Improvement in Health and Welfare, Hälsohögskolan, Jönköping University.

11:30-12:00
Reflection panel with systems perspective - what is needed for collaborative initiatives to work in practice?

Åsa Steinsaphir, user influence coordinator, North Stockholm Psychiatry

Karin Pukk Härenstam, consultant pediatrician and Patient Safety Officer, Astrid Lindgrens Children's Hospital 

Li Alemo Munters, Head of Research at the Swedish Rheumatism Association, representative for the Patient Research Partner programme. 

Lisbeth Löpare Johansson, Coordinator for local health care at the Swedish Association of Local Authorities and Regions (SALAR).

12:00-13:00
Lunch break
13:00-14:00
International inspiration (session in English)

Gina Assaf and Hannah Davis – Patient-led research for covid -19

Patient-Led Research is a self-organized team of Long Covid patients born out of the Body Politic COVID-19 support group.

We work on patient-led research around the COVID experience and prolonged recoveries. The team is made up of researchers in relevant fields – participatory design, neuroscience, public policy, data collection and analysis, human-centered design, health activism – in addition to having intimate knowledge of COVID-19.

We've presented this research to the WHO, CDC, and NIH, and have been cited in major medical journals such as the British Medical Journal, JAMA, and Fatigue.

Sarah Myers, MPH, RN, Health Care Quality Improvement Facilitator
Sarah Myers has two decades of experience leading successful complex collaborative quality improvement initiatives and Networks, with a special interest in enabling meaningful engagement of all partners (including patients/customers) in quality improvement and innovation activities. 

Tessa Richards, BMJ Senior Editor/Patient Partnership 
Dr. Tessa Richards worked in the NHS as a general physician and rheumatologist and also in general practice before joining the BMJ editoral team, where she is a Senior Editor. She developed and led the BMJs Patient and Public Partnership Strategy from 2014-2020 and a key part of her current role is to commission the journals Partnership in Practice series.

She is also a cancer patient and a carer for close family members with long term conditions.

14:00-14:45
Your reflections on co-care – a flipped Q&A
14:45-15:00
Summaries and closing remarks

Contact us

If you have any questions or concerns, please feel free to contact us.

Elena Eftimovska

Project coordinator